Bleeding disorders are life-threatening, debilitating, and expensive to treat with many physical, emotional and social challenges. A child with severe Hemophilia will spend over $150,000 annually to prevent bleeding.
Some children and adults build up inhibitors to the treatment and the costs can exceed $1,000,000 per year. Failure to preventatively treat the disorder can result in prolonged painful bleeds that cause permanent and severe damage. Proper medical care and an ability to manage through the ‘insurance maze’ becomes paramount. Teens need to fully appreciate the importance of getting a quality education so that they can get a job with sufficient insurance.
The entire family is affected by the bleeding disorder physically, emotionally, and financially. With over 40 years experience, we are the only agency in the state of Arizona that provides programs and services to people affected by bleeding disorders so that they can better cope with their disorder and can become self-advocates for themselves and/or their family. We partner with Hemophilia Treatment Centers, other agencies, and medical professionals to provide programs and services unique to the bleeding disorder community to best meet their needs.